MENDUKUNG KEPATUHAN PENGOBATAN DENGAN BERBAGI KEBAHAGIAAN DAN MENJADI SAHABAT: STUDI KASUS DI KOMUNITAS SAHABAT ANAK KANKER MALANG, INDONESIA

Febriana Ira Handian, Yeni Fitria, Mahmudatul Rodliyatil Falah

Abstract


Treatment  compliance  of  Acute  Lymphoblastic  Leukemia  (ALL)  important  to

improve morbidity and one of keys to successful treatment in children with ALL. Sahabat Anak Kanker Malang is a non-state community of self help group cancer engaged to build positive perceptions of patients and families about the fight against  cancer  in  Indonesia.  By  elaborating  Friedmans  role  theory  as  a theoretical framework, this research is aimed to explore the role concept self help group cancer childhood to support compliance care of parent in ALL children. Moreover, this study also contribute to introducing self help group cancer role framework to the community and health workers as an alternative compliance improvement programs based on community and give alternative program for other cancer communites in Indonesia in determining support programs for ALL. This study was conducted by case study in qualitative design with 25 participants from   volunteers,   health   workers   and   the   community.   Data   conducted   in Komunitas Sahabat Anak Kanker Malang, Malang City of East Java and Surroundings Area by participatory observation, in-depth interview and focus group discussion. Data were analyzed with data reduction, display, conclusion, verification and assisted by opencode software 4.0. This research found that this community offered a major program to share happiness with cancer children and being friends for them, motivators as well as facilitators for medication compliance, develop fun hospital atmosphere for children and gain networking to support patients and parents. Although they faces difficulties when interacting with health worker technically in the treatment room, the activities undertaken by this community get wide positive responses as an alternative program and complete maintenance activities that can not be fully done by the hospital

Keywords: Treatment     Compliance,     Self     Help     Group,     Cancer,     Acute Lymphoblastic Leukemia, Non-State Community


Full Text:

PDF (Indonesian)

References


Sitaresmi MN, Mostert S, Schook RM, Sutaryo, Veerman AJP. Treatment Refusal and Abandonment in Childhood Acute Lymphoblastic Leukemia in Indonesia : an Analysis of Causes and Consequences. Psychooncology.

;19(361):361–7.

Imbach P, Kuhne T, Arceci R, editors. Pediatric Oncology a Comprehensive Guide. New York: Springer; 2004.

McKenna K, Collier J, Hewitt M, Blake H. Parental Involvement in Paediatric Cancer Treatment Decisions. Eur J Cancer Care (Engl) [Internet]. 2010

Sep [cited 2014 Jan

;19(5):621–30. Available from: http://www.pubmedcentral. nih.gov/articlerender.fcgi?ar tid=3178788&tool=pmcentr ez&rendertype=abstract

Candy B, France R, Low J, Sampson L. Does involving volunteers in the provision of palliative care make a difference to patient and family wellbeing? A systematic review of quantitative and qualitative evidence. Int J Nurs Stud [Internet]. Elsevier Ltd;

;52(3):756–68. Available from: http://dx.doi.org/10.1016/j.ij nurstu.2014.08.007

Friedman MM, Bowden VR, Jones EG. Family Nursing: Research,Theory and Practice. 5th Ed. New Jersey: Prentice Hall; 2003.

Stukas AA, Hoye R, Nicholson M, Brown KM, Aisbett L. Motivations to Volunteer and Their Associations With Volunteers’ Well-Being. Nonprofit Volunt Sect Q.

;899764014561122.

Block EM, Casarett DJ, Spence C, Gozalo P, Connor SR, Teno JM. Got Volunteers? Association of Hospice Use of Volunteers With Bereaved Family Members’ Overall Rating of the Quality of End-of-Life Care. J Pain Symptom Manage [Internet]. Elsevier Inc; 2010;39(3):502–6.Available from:http://dx.doi.org/10.1016/j.j painsymman.2009.11.310

Siette J, Cassidy M, Priebe S. Effectiveness of befriending interventions: a systematic review and meta-analysis. BMJ Open [Internet]. 2017;7(4):e014304. Available from: http://bmjopen.bmj.com/loo kup/doi/10.1136/bmjopen-2016-014304

Kramer MW, Danielson MA. Developing and Re- Developing Volunteer Roles. Manag Commun Q [Internet]. 2016;30(1):103– 20. Available from: https://nanyadongdok.blogspot.com/2017/06/kanker-payudara-informasi-penyebab.html

Burbeck R, Low J, Sampson EL, Scott R, Bravery R, Candy B, et al. Volunteer activity in specialist paediatric palliative care: a national survey. BMJ Support Palliat Care. 2015;5:287–93.


Refbacks

  • There are currently no refbacks.


View My Stats