MENDUKUNG KEPATUHAN PENGOBATAN DENGAN BERBAGI KEBAHAGIAAN DAN MENJADI SAHABAT: STUDI KASUS DI KOMUNITAS SAHABAT ANAK KANKER MALANG, INDONESIA

Abstract

Treatment  compliance  of  Acute  Lymphoblastic  Leukemia  (ALL)  important  to

improve morbidity and one of keys to successful treatment in children with ALL. Sahabat Anak Kanker Malang is a non-state community of self help group cancer engaged to build positive perceptions of patients and families about the fight against  cancer  in  Indonesia.  By  elaborating  Friedmans  role  theory  as  a theoretical framework, this research is aimed to explore the role concept self help group cancer childhood to support compliance care of parent in ALL children. Moreover, this study also contribute to introducing self help group cancer role framework to the community and health workers as an alternative compliance improvement programs based on community and give alternative program for other cancer communites in Indonesia in determining support programs for ALL. This study was conducted by case study in qualitative design with 25 participants from   volunteers,   health   workers   and   the   community.   Data   conducted   in Komunitas Sahabat Anak Kanker Malang, Malang City of East Java and Surroundings Area by participatory observation, in-depth interview and focus group discussion. Data were analyzed with data reduction, display, conclusion, verification and assisted by opencode software 4.0. This research found that this community offered a major program to share happiness with cancer children and being friends for them, motivators as well as facilitators for medication compliance, develop fun hospital atmosphere for children and gain networking to support patients and parents. Although they faces difficulties when interacting with health worker technically in the treatment room, the activities undertaken by this community get wide positive responses as an alternative program and complete maintenance activities that can not be fully done by the hospital

Keywords: Treatment     Compliance,     Self     Help     Group,     Cancer,     Acute Lymphoblastic Leukemia, Non-State Community